CRESTA Fatigue Clinic Health Champs survey - what would you like to see?

 

Hi all

below is a link to our survey. There are now 108 of us fatiguers, so we would be really interested in your views, and what you would like us Health Champs to organise - within reason - no requests for all expense trips to the Bahamas please :-)

If you could spare 5 mins of your time to give us some feedback, that will help steer what we arrange in future

many many thanks for your input

https://www.surveymonkey.co.uk/r/6BL2RX5

Kirsty

Dates for your diary 2016

Dates for your diary!

The lovely Angela has arranged some get-togethers and all fatigue CRESTA patients and staff are very, very welcome- we'd love to see you there! All the details are below:

Any illness can leave you feeling a bit isolated. We are here to help you take those first steps back to a social life, or add to your existing one. Come and meet some very friendly Champions/fellow patients and carers at one (or more!) of these get togethers:

Saturday  30th Jan 2016, 11am at the cafe at the Laing art gallery, Newcastle - lovely to see everyone
Saturday  9th Apr 2016, 11am at the cafe at the Laing art gallery, Newcastle

We have had a thought and wondered about doing our socials on the last saturday of the month every other month, so its easy to remember and allow people to plan ahead.  

Sat 25 June 2016 -11.00 - tba

Sat 27 Aug 2016 - 11.00 - tba

Sat 29 Oct 2016 - 11.00- tba

This is a trial so happy to hear your thoughts/ any feedback. Locations for later socials to be announced, but will be central Newcastle somewhere, all suggestions welcome

Hi, the above have been cancelled whilst we are having a a rethink re socials, as not many people turn up so we are questioning if they are useful/ what people want . We would really like to see what you would like and have launched survey to capture your ideas - Link below

There are now 108 of us fatiguers, so we would be really interested in your views, and what you would like us Health Champs to organise - within reason - no requests for all expense trips to the Bahamas please :-)

If you could spare 5 mins of your time to give us some feedback, that will help steer what we arrange in future

many many thanks for your input

https://www.surveymonkey.co.uk/r/6BL2RX5

Kirsty

Housekeeping: Minimum of 4 people for an event, or the event will be cancelled. 

All events are intended to be friendly, relaxed and supportive, however, they are not intended as a support group. If it is a support group you are interested in, please contact us on the email address or Facebook below, and we will do our best to get the relevant info to you.

All events are open to patients, fatigue CRESTA staff and clinicians. Please bare in mind that these events are not hospital appointments, and individual health concerns should not be raised at these events.

Finally...enjoy, and we look forward to meeting you!!

If you would like to come along to any of the above, would like more information, or would like to put forward your own ideas, please contact us at:

Crestachamps@gmail.com

or on our Facebook page 

https://www.facebook.com/CRESTA-Fatigue-Clinic-Health-Champions-1555500658041903/?fref=ts- 

While it is really useful if people can give us an idea whether they are able to come or not, so that we can check each meet-up is viable, get contact details for if we need to cancel, and establish numbers to book tables etc if necessary, we have chronic illnesses ourselves so are fully aware that people may need to back out last minute due to illness! We may need to do the same though, which is why we'd really appreciate if you could email us at to let us know that you intend to come, so that we can let you know if we have to cancel. Thanks!

Hello from Dave

This is Daves story who is one of our Health champs. Published on the ME support web pages. Good to share our stories so we don't feel alone and also share our coping strategies

http://www.mesupport.co.uk/index.php?page=my-journey-through-me